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My son Benjamin was born with a couple syndromes, VACTERL & Moebius. VACTERL caused some birth anomolies and moebius has made it so that Benjamin has some facial paralysis. Over the last two years we have had to deal with issues regarding VACTERL such as pollicization. Now we are dealing more with issues related to Moebius such as speech difficulties and eating issues. Please email me if you have any questions!
2 comments:
Happy Birthday Benjamin! Man, I am jealous - I loved my sit n spin growing up. . . .
Happy B-day Benjamin and many more! My name is Olivia we live in CA and I have been following your story. I have a 17 almost 18 month old boy (Alfonso) who was diagnosed with VATERS at birth. Every time I read what you are going through, it's just our story. Right now my husband and I are debating about the pollicization. Alfonso just started walking last Saturday a reason why we decided not to do it this month as it was scheduled, we did not want him to get more behind on his walking. We would love for you mom to contact us if possible to ask her some questions. We will really appreciate it. My e-mail is olyleal@hotmail.com Thank you!
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